The Importance of Social Work in the Latin American Association Movement of People Affected by Low Prevalence Diseases

Authors

Enrique Pastor Seller, Murcia University, SpainFollow
Juan Carrión Tudela, Latin American Alliance of Rare Diseases
M. Bañón Hernández, Almeria University, Spain

Keywords

Rare Disease (RD), Low Prevalence Disease (LPD), Latin American Alliance of Rare Diseases (ALIBER), Social Fabric, Association Movement—Social Work

Abstract

This article analyses the experiences of the association movement in Latin America that brings together individuals and families with rare (RD) or low prevalence diseases (LPD). It also looks at their needs from global health, social, research and education perspectives. The nature of social work assessments and interventions in rare diseases helps us better understand the needs of people with RDs or LPDs and facilitates the creation of associations. Social work aims at consolidating the social fabric that will lead to the recognition of RDs as a health and social priority at an international level.

Recommended Citation

Seller, Enrique Pastor; Tudela, Juan Carrión; and Hernández, M. Bañón (2018) "The Importance of Social Work in the Latin American Association Movement of People Affected by Low Prevalence Diseases," The Journal of Sociology & Social Welfare: Vol. 45: Iss. 1, Article 11.
DOI: https://doi.org/10.15453/0191-5096.4173
Available at: https://scholarworks.wmich.edu/jssw/vol45/iss1/11