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Credentials Display

Gary Bedell, PhD, OTR/L, FAOTA; Nicole Porter, MS, OTR/L, OTD; Miranda Cullen, MS, OTR/L, OTD; Zachary Gould, MS, OTD/s; Stephanie Freeman, MS, LCSW

Abstract

Background: This study examined the usability and potential benefits of Social Participation and Navigation (SPAN), a virtual coaching goal planning intervention, which was modified for adolescent and young adult (AYA) brain tumor survivors who often experience social participation challenges.

Methods: Four AYA brain tumor survivors participated in a brief trial of the modified SPAN consisting of four weekly coaching sessions with trained supervised occupational therapy graduate students and use of a website and web application to assist with goal planning and achievement. The participants rated their social participation and SPAN-specific skills pre/post program. The participants and parents completed 1-week and 1-month usability surveys post program. Effect sizes were computed to examine pre/post score changes. Descriptive statistics and content analyses were used to examine quantitative and qualitative usability data.

Results: SPAN was well-received by the AYAs, parents, and coaches with high satisfaction ratings for coaching. All participants achieved at least one goal. The participants had increased post-intervention scores in social participation (overall, school, community) and SPAN skills (goal planning, self-regulation, reciprocal communication). Suggestions for improvement primarily focused on the SPAN web application.

Conclusion: The results demonstrated the usability and potential benefits of SPAN for AYA brain tumor survivors and have informed a larger implementation trial.

Comments

The authors declare that they have no competing financial, professional, or personal interest that might have influenced the performance or presentation of the work described in this manuscript.

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