Credentials Display

Brian P. Johnson, OTR/L
Mark V. Johnston, PhD, FACRM


Background: With the increasing complexity of care, people with disabilities and supportive significant others (SSO) must often coordinate key aspects of their own care, but no validated scale currently exists to comprehensively characterize the activities done to manage and coordinate their care.

Method: This study aimed to improve the feasibility, acceptability, and content validity of the Care and Service Coordination and Management (CASCAM) scale and to test its internal consistency. Questionnaire items were administered to 23 individuals with acquired brain injury and 17 SSO.

Results: Respondents confirmed content validity and that the instrument addresses important care coordination and management issues. The internal consistency of care coordination domains for medical/rehabilitative and independent living needs for people with brain injury and their SSO ranged from α = .774 to .945.

Conclusion: Care coordination activities by persons with disabilities, including brain injury, and their SSO are multifaceted but feasibly measurable and should be assessed to improve care.


This research was supported by a Research Growth Initiative grant 101X0844 to the corresponding author from the associated university.